Stories of Hope 

Once diagnosed with Sarcoma, your life and the lives of the people around you change forever. These are our stories of hope.

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"A medical journey full of surprises."

It was May 11, 2016, the day before my birthday. I was explaining to my family doctor about pain radiating along my lower abdominal area. Since I already had an existing umbilical hernia I reasoned that was the cause. My doctor claimed that hernia should not be producing any pain, so he proceeded to press around the abdominal region for an alternative cause. I could see by the looks on his face that he had found something. After probing he indicated there was definitely something present in the right lower section of the abdomen. He expressed concern and immediately recommended an ultrasound for a further examination. This would be surprise number one and lead me into a prolonged series of medical visits for the next six months.

Read Andy's full story


"There was no time to worry, I had to take care of my kids."

In the spring of 2012, while awaiting the birth of her second son, Beth was incapacitated by a growth on her right foot. Unable to receive treatment because of her condition, she persevered until the pain became unbearable. Tests revealed a tumor, and biopsy results confirmed the growth to be Synovial Sarcoma, a rare form of cancer. Beth underwent an emergency Caesarian section. Little William was delivered safely, and received wonderful care in Windsor Regional’s NICU. Beth was then admitted to Mount Sinai Hospital in Toronto, home to a world renowned Sarcoma clinic. Dr. Peter Ferguson performed surgery to remove Beth’s right leg below the knee.

Read Beth's full story


"I was very fit. I watched what I ate, exercised nearly every day. I didn't smoke and rarely drank. I couldn't believe I had cancer."

I am happy to be able to say that I’m a sarcoma cancer survivor with a story to share. Not so long ago, I wasn’t sure that would be the case. I remember waiting patiently for my doctor to return and tell me about the details of my first ever surgery. I was a very fit and healthy twenty seven year old who carefully watched what I ate and exercised nearly every day, with something approaching religious fervour. I didn’t smoke, and I drank socially on a very rare occasion. The doctor entered the examination room in a rush.

Read David's full story


"Sarcoma. Very rare. Chronic. Incurable. Stage 4. I think every single one of those words is enough to strike fear in your heart, but in combination, it is enough to change your life."

Sarcoma. Very rare. Chronic. Incurable. Stage 4. I think every single one of those words is enough to strike fear in your heart, but in combination, it is enough to change your life. It certainly did mine. It was November 1st, 2017. I had had a dry cough. Nothing horrible, but it persisted for a couple of years.

Read Fiona's full story


"Although a great shock, I finally had an answer and realized I wasn’t going completely insane."

So where does my journey start? November 5, 2009, is when cancer first impacted my life. After several operations and two years of misdiagnosis I finally had an answer to why I’d been in so much pain. I had a Synovial Sarcoma in my left arm, 2 cm in size. Although a great shock, I finally had an answer and realized I wasn’t going completely insane.

Read Jane's Full Story


"I have to say I felt some resentment about having Sarcoma, this disease that I had to face without others as it was so ‘rare’."

December 2011 - I am running in the cold with my best friend for a party. Why are we running? It’s cold - really cold! We are headed to a Christmas party, which my bestie has begged that I attend with her. The girl holding the party went to high school with her so she is unsure of who will be there – please come! Of course I will be there. Something is wrong though, I can feel it in my side as I am running. My side is hurting and it’s not a cramp, it’s a different hurt – but I am running so it must be that. I dismiss it – it is Friday night.

Read Sonja's full story


"My journey has been amazing in ways I may not have imagined at the start. It has helped me realize how precious life is."

In May of 2010, during a routine exercise workout I felt a small hard circular cyst-like lump in my left thigh. I left it, simply thinking it was a cyst and by August it had grown to the size of a golf ball. It became visible through my jeans, but I still left it thinking this “cyst” was getting out of control. In October my husband booked me the first doctor’s appointment of my journey. December of 2010, I had surgery to remove the mysterious tumour in my leg. At the time, I told my kids (ages 5 & 6) the doctors were going to take the lump out of my leg to make sure that mommy was healthy. I wanted them to be aware, but not ever afraid.

Read Tawsha's full story


"I am so thankful to be alive and anxious to share with many that there is life - good life - after cancer."

In March of 2013 the large tumour on my right groin was determined to be cancer. It was a form of cancer I had never heard of before - liposarcoma. "You have the same type of cancer Terry Fox had", the Oncologist said, "only in the fatty tissue". Everything in my world was about to change.

Read Tim's full story


"It's a cancer that not enough people are aware of. It's so rare I can't even blame the doctors for missing it."

Back in 2008, I had a terrible pain in my lower back and right leg. None of the doctors I went to could figure it out, and my physician at the time only took an X-ray of my back. After about a year of trying different forms of treatment for the pain, a pain specialist sent me for a total body bone scan. That was when I was diagnosed with Ewing's Sarcoma, in December of 2009.

Read Valerie's full story